Parents’ Advocacy

“I feel on speaking with other parents….that sharing information is key. Support is needed. Non judgement needs to become the norm. Awareness needs to be made public and shared out, so people have knowledge, understanding and life experiences to reflect on those who have medical conditions and disabilities. Why should those who are unwell, different or disabled be made to fit into other people's world, this world is big enough for all walks of life, we need to be more inclusive and non-judgemental. We all need to do our bit and love and support each other, life is hard enough. Voices need to be heard, without the need for them to be raised.” (disabled mum of a disabled child, focus group meeting feedback April, 2025)