Parent’s views

This group have shared personal stories from the point of view of:

• parents accessing information for equipment, mobility devices, services, emotional support etc… for their disabled children.

• children’s perspectives about which services or equipment they found beneficial to them.

• Family members expressing the need for skills to better support their child with disability.

• Collaboration with other families with similar experiences, extending knowledge with health and education professionals.

• Relevance and importance of diagnosis and labels for health care support such as  feeding an respiratory teams, sleep issues, mobility support, speech & language support, learning support & EHCP provision etc…

• Every child has a unique  story of development and enhancing daily living experiences with mobility furthers capacity for educational and social skill acquisition.